Hey, there’s no need to rush off to heaven just yet
You don’t have to go just yet—after all
You’re the one who gets to decide when it’s time to leave
Even if I take a detour, even if my load is heavy—with ALS—
I’ll never wander alone
My loved ones are my navigators
Let life’s light shine bright
My heart is free—let it dance, Dancing
The journey may be harsh and rugged
But keep moving forward, searching for hope and happiness
Don’t give up—
You’ll surely find something good
If you look, you’ll find something—the meaning of life
Now that I’m here, there are so many things I’ve come to understand
I love you
My heart is free—dance, dancing!
The journey may be harsh and rugged
But keep moving forward, searching for hope and happiness
You’ll surely be able to find it
You’ll surely find it
Let your life burn bright
Your heart is free—dance, Dancing
Your heart is free—dance, Dancing
Your heart is free—dance, Dancing
Your heart is free
Your heart is free—dance, Dancing
Your heart is free—dance, Dancing
Your heart is free—dance, Dancing
The journey is harsh and rugged
But keep moving forward, searching for hope and happiness
Don’t give up—
You’ll surely find something good
The journey may be tough and rugged
But keep moving forward, searching for hope and happiness
Don’t give up
Your heart is free—dance! Dancing
Your heart is free
Your heart is free—dance! Dancing
Your heart is free
The journey may be tough and rugged
But keep moving forward, searching for hope and happiness
Don’t give up
Your heart is free—dance! Dancing
Your heart is free
Your heart is free—dance! Dancing
Your heart is free
- Lyricist
ALS Momo-chan's Dad
- Composer
ALS Momo-chan's Dad
- Producer
ALS Momo-chan's Dad
- Vocals
ALS Momo-chan's Dad
Listen to REGEEKOKOROWAJIYUUDA (English) by ALS Momo-chan's Dad
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REGEEKOKOROWAJIYUUDA (English)
ALS Momo-chan's Dad
Artist Profile
ALS Momo-chan's Dad
I am a patient with amyotrophic lateral sclerosis (ALS). In October 2021, I went to a respiratory medicine clinic because I was having difficulty breathing while walking. I was diagnosed with asthma. After that, I went to Tokyo Medical University Hospital and National Center for Global Health and Medicine Hospital, but the cause remained unknown. On June 8, 2022, I was barely able to breathe, but somehow made it to Keio University Hospital. They said my respiratory muscles were damaged. My lungs were not the issue. At that point, I realized, This is incurable.Upon researching online, I discovered that 2% of ALS cases originate from respiratory muscle dysfunction. After undergoing various tests, I was transferred to Osaka in July, where my diagnosis of ALS was confirmed. Seventy percent of ALS patients in Japan die without undergoing tracheostomy. Since my respiratory muscles were the only ones affected, I felt it was too early to die and resolved myself to eventually undergoing tracheostomy. Just two months after the ALS diagnosis, on September 7, 2022, I underwent emergency tracheostomy due to pneumonia, followed by laryngectomy two months later. ALS is an incurable, progressive, and extremely severe disease! It is a terrifying illness where all muscles in the body eventually lose function, including the eyes. I am sharing videos of my life, focusing on the uniqueness of my ALS onset in the respiratory muscles, aiming to halt progression and achieve improvement. I also create music while bedridden. Translated with DeepL.com (free version)
ALS Momo-chan's Dadの他のリリース
ALS Momo-chan's Dad
